EuRREB - European Registries for Rare Endocrine and Bone conditions

About EuRREB - European Registries for Rare Endocrine and Bone conditions

EuRREB – European Registries for Rare Endocrine and Bone conditions supports patients, healthcare professionals, and researchers in collecting data through patient-centered registries.

Our mission is to advance research and improve treatment for those affected by these rare conditions. Through our key registries, e-REC and Core Registry, we provide a platform for collecting vital data and fostering collaborative research across Europe.

We serve and work closely together with the European Reference Networks (ERNs): Endo-ERN and ERN BOND. We are also supported by patients, researchers, clinicians, scientific societies and patient societies to build this database.

Together, we are building a brighter future for those affected by these rare diseases. Want to contribute to groundbreaking research and help improve treatments for rare endocrine and bone conditions? Join us and be part of this important mission.

more data, better outcomes

Keywords

• Endocrinology
• Osteology
• Rare Diseases
• Skeletal Dysplasias

Address

• Headquarters

  Albinusdreef 22333ZA LeidenZuid-Holland, Netherlands

Team by function

Based on 5 public job profiles as of 4 August 2026.

• Data / Analytics / Science1
• Healthcare / Medical1
• Legal / Compliance1
• Operations1
• Research / R&D1